Apraxia Awareness Day

My son loves trains!

Occasionally I mention in my posts that my oldest son has difficulty speaking and that he speaks mainly through sign language.  It's not something I talk about a lot here simply because the point of this blog was to focus on the things I enjoy: writing, reading, blogging, etc, and to connect with people online with similar interests.  But, as today is the first annual Apraxia Awareness Day, I figured why not share with you what it is my son and my entire family struggle with each day.  

My son has apraxia.  Here are a few facts about it, taken from apraxiadventures.com:

Childhood Apraxia of Speech (CAS) is a motor speech disorder.  Children with CAS have problems saying sounds, syllables, and words. This is not because of muscle weakness or paralysis. The brain has problems planning to move the body parts (e.g., lips, jaw, tongue) needed for speech. The child knows what he or she wants to say, but his/her brain has difficulty coordinating the muscle movements necessary to say those words. 

CAS is a low incidence disorder.  Best estimates suggest that about 1 in 1000 children (0.1%) of children are affected by CAS.

A child with CAS may also present with other motor planning deficits.  Oral apraxia indicates that a person has difficulty with volitional control of non-speech movement; ie, sticking out the tongue, puckering, smiling, blowing, licking. Limb apraxia refers to motor planning deficits relating to arms, legs, fingers, etc.  (It is suspected that my son has verbal, oral and limb apraxia and therefore goes to speech, physical and occupational therapy). 

Appropriate speech therapy for CAS is three times per week for 30-minute individual sessions.  As children improve and develop speech motor control over volitional utterances, frequency can be reduced accordingly, as long as they maintain and generalize improvements. 

Although appropriate treatment is intensive and takes place over a number of years, children with CAS are capable of making many gains and many are capable of developing intelligible speech.  Some children may have some minor differences in their speech, their intonation may not be perfect, or others may perceive some sort of accent. However, most children will speak in a way that others understand.

Hope you learned something today!  If you are interested in knowing more about my son's journey, our struggles and victories as he learns to speak, please check out my other blog: http://sweetapplesofgold.blogspot.com/

Happy Speech and Hearing Awareness Month!